Still not doing much

Nov. 28th, 2015 01:56 pm
rmc28: Photo of me shortly before starting my first half-marathon (Default)
[personal profile] rmc28
Yesterday I did something I haven't done in weeks: unloaded the dishwasher.  And then I had to go have a lie down to recover from it.  I am definitely well enough to really resent how much more recovery I've got ahead of me.

I managed quite a lot of shopping from my laptop yesterday: not really for the stupid Black Friday stuff, but because it was the first day I've been up to sitting up AND thinking for long enough.  Today I am trying to catch up on the household accounts and some of my email.  And then I really must try to get some study done: I negotiated an OU deadline extension as soon I went into hospital, but the extended deadline is coming up.

My next outpatient appointment is Wednesday - a whole week since the last one, it feels almost like a holiday.  I was supposed to see the consultant in clinic on Tuesday 1st, but a) it got moved because of the junior doctor's strike and b) my blood counts weren't up enough for the test that needs doing before I see the consultant again, so it'll probably get moved back again.

I've watched the Captain America: Civil War trailer a couple of times and it's possible I won't hate it? At least I should be fine to go to the cinema well before May.  I'm also planning to watch Jessica Jones once I'm less tired.  (When I'm tired I mostly don't want to watch film/TV at all, or at least only familiar things.)

Status: mostly sleeping

Nov. 23rd, 2015 05:54 pm
rmc28: Photo of me shortly before starting my first half-marathon (Default)
[personal profile] rmc28
I realised it's been nearly a week since I got home, and I'm fine, I've just mostly been in bed, either asleep or binge-reading fanfic.   I get up for meals, and to help get the children out in the mornings, and to fetch C from after-school care three times a week, but then I usually need to go back to bed afterwards.

I've been in to the day unit last Thursday and today, and it seems this exhaustion is normal for this stage of the chemo cycle.  (This is still the Evil Blue cycle - I've not actually had any of it for nearly 3 weeks,  but it clearly did a really thorough job on my blood cells which have fallen much farther than the previous cycle.)  When I get better, I have a biopsy to look forward to, and then the fourth and hopefully last round of chemo.

Due to lack of communication, Tony and I both bought a copy of Minions, which Charles saw in the cinema earlier this year, and adored. The four of us sat down to watch it on Saturday afternoon and it worked really well as a family film.  I don't think I want to watch it again but it was fun to watch once, especially with the children both enjoying it.

Otherwise, I'm beginning to think about When Treatment Is Over, and what normal is going to look like for the four of us when we get back there.


Nov. 17th, 2015 09:35 pm
rmc28: Photo of me shortly before starting my first half-marathon (Default)
[personal profile] rmc28
Back in bed, but at least it's my own.  So much stuff to catch up on .... tomorrow, and maybe the rest of the week.  I have to go back in to the day unit on Thursday anyway.

Waiting for blood and drugs

Nov. 17th, 2015 03:52 pm
rmc28: Photo of me shortly before starting my first half-marathon (Default)
[personal profile] rmc28
I am all packed and ready to go. Tony came earlier and took my laundry away. The pharmacist has been in to check my medicine supplies. But I need blood and platelets before I can go & they haven't come up from the blood bank yet.

Anyway my lovely nurse today is keeping me updated and I have all the internet on tablet or phone so it could be far worse. (The doctor said it's nice to have patients who get better and go home, which makes me think she's got a few too many of the other kind this week.) Looks like I'll still be here at suppertime.

Think cool thoughts for me

Nov. 16th, 2015 05:02 pm
rmc28: Photo of me shortly before starting my first half-marathon (Default)
[personal profile] rmc28
 My temperature has been stable for nearly two days now, and the infection marker that was really high has come down. If my temperature remains stable overnight I should be able to go home tomorrow. They may top me up with transfusions first, so it won't be first thing, but I've not got much to pack.

As usual, believe it when the discharge bag arrives and ward exit is actually achieved.


Matthew Garrett

About Matthew

Power management, mobile and firmware developer on Linux. Security developer at CoreOS. Member of the Linux Foundation Technical Advisory Board and the Free Software Foundation board of directors. Ex-biologist. @mjg59 on Twitter. Content here should not be interpreted as the opinion of my employer.

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